Welcome to the website! We are most often contacted by families whose children have recently been diagnosed with
Friedreich's Ataxia, and those with Friedreich's Ataxia who are seeking specialized medical care, like neurologists and
cardiologists with experience in this area.
Whatever your reason for visiting, you are very welcome, and I will endeavour to fulfill your needs as much as I am able.
My typing's not the best, so please be patient if I don't get back to you right away.
If you have a child with F.A., I hope that you will be heartened by the fact that I am 42, and in relatively
reasonable health. Because F.A. is such a rare disease, it is possible that your G.P. (family doctor) may not have
heard or know much about the disease, or that the information which they have or have access to is dated. As with any
disease, the expert whom you should come to rely on the most with regards to this disease is yourself. Hopefully,
this website will go a long way to helping you in your quest for knowledge.
I have encountered a wide range of health practitioners, some of whom had read as little as a paragraph in a text
book on Friedreich's.
On the other end of the spectrum are neurologist Dr. Mark Tarnopolsky, and cardiologist Dr. Elaine Gordon
of Hamilton Health Sciences (McMaster University). Both of these fine practitioners have been amazing in maintaining
my health. Both have several patients with Friedreich's.
Dr. Tarnopolsky has done several studies of benefit to people with F.A., using people with F.A. as subjects, including
studies on weight lifting, and studies on the use of antioxidants, both to counter the progression of the disease.
the "Ataxian" is a UK publication which gives information on many facets of people with ataxia, including studies which
are being done in UK and Europe.
I hope that you have found something of use to your knowledge quest here today. I will be building much more on,
and hope that you visit often.
If you have questions or feedback, please contact Sandra Salamon at:
